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For Kinsley's Sake Sickle Cell Association of Texas Welcomes You

Created to Make An IMPACT

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At For Kinsley's Sake Sickle Cell Association of Texas, we strive to help improve the quality and sustainability of life for every Sickle cell recipient.  Our association will work as a catalyst in  communities to help raise awareness and educate society about Sickle Cell Disease prevention and care. Please partner with us by pledging to give towards the work that we are committed to.  Click the button below to give your best gift today.

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What we are striving to accomplish!!!!

For Kinsley's Sake Sickle Cell Association of Texas's mission is to bring awareness to communities about the causes, symptoms, and treatments of Sickle Cell Disease.  It will educate people and workplace facilities in the communities, provide financial relief for Sickle Cell patients and caregivers by helping to pay for medication, supplies, treatments, getaways for relaxation for caregivers and recipients, camp/field trips for patients, respite for caregivers, and by providing other resources that are needed to help families with family members living with the Sickle Cell Disease.

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What is Sickle Cell?

Inform Me Please

Sickle cell disease (SCD) is one of the most common inherited blood disorders. It’s passed down through families. You’re either born with it or you’re not.  It cannot be caught, developed, or inherited later in life.  Sickle Cell gets its name from the shape that the red blood cells take on as they develop in the blood stream.  Red blood cells start out round, smooth and flexible, but if you have sickle cell; they began to change.  As time goes by, the round cells began to shrink and sickle into to a crescent shape that is rigid, curved, and pointy on the ends.  Due to this, the cells are no longer able to travel effortlessly through the blood cells without sticking together and getting stuck.  This is a problem because our red blood cells contain hemoglobin which is the protein that carries our oxygens.  As cells sickle, they began to limit the amount of oxygen and blood flow to vital limbs and organs.  Approximately 100,000 people in the US have Sickle Cell disease. The largest ethnic group impacted is African American.

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Sickle Cell does not discriminate!!!!It touches even the smallest of us!

La'Keshia Jarmon

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Symptoms/Complications of Sickle Cell

  • Swelling of the limbs; legs, arms, hands, and feet

  • Excessive urination during the day or bedwetting at night

  • Swollen Spleen

  • Jaundice or yellowing of the white part of the eyes and yellowing of the skin

  • Anemia

  • The demonstration of pica

  • Pain in the body

  • Frequent infections

  • Acute Chest Syndrome

  • Vision Problems

  • Stroke- any age can be affected

  • Priapism – persistent and painful erection of the penis

  • Heart and Lung problems

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Types of Sickle Cell Disease

Hemoglobin is the protein in red blood cells that carries oxygen. It normally has two alpha chains and two beta chains. The four main types of sickle cell anemia are caused by different mutations in these genes.

Hemoglobin SS disease

Hemoglobin SS disease is the most common type of sickle cell disease. It occurs when you inherit copies of the hemoglobin S gene from both parents. This forms hemoglobin known as Hb SS. As the most severe form of SCD, individuals with this form also experience the worst symptoms at a higher rate.

Hemoglobin SC disease

Hemoglobin SC disease is the second most common type of sickle cell disease. It occurs when you inherit the Hb C gene from one parent and the Hb S gene from the other. Individuals with Hb SC have similar symptoms to individuals with Hb SS. However, the anemia is less severe.

Hemoglobin SB+ (beta) thalassemia

Hemoglobin SB+ (beta) thalassemia affects beta globin gene production. The size of the red blood cell is reduced because less beta protein is made. If inherited with the Hb S gene, you will have hemoglobin S beta thalassemia. Symptoms are not as severe.

Hemoglobin SB 0 (Beta-zero) thalassemia

Sickle beta-zero thalassemia is the fourth type of sickle cell disease. It also involves the beta globin gene. It has similar symptoms to Hb SS anemia. However, sometimes the symptoms of beta zero thalassemia are more severe. It is associated with a poorer prognosis.

Hemoglobin SD, hemoglobin SE, and hemoglobin SO

These types of sickle cell disease are more rare and usually don’t have severe symptoms.

Sickle cell trait

People who only inherit a mutated gene (hemoglobin S) from one parent are said to have sickle cell trait. They may have no symptoms or reduced symptoms.

Sickle Cell Anemia (2017, March 29)

www.healthline.com/health/sickle-cell-anemia#types

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Contact For Kinsley's Sake Sickle Cell Association of Texas

Get in touch with For Kinsley's Sake Sickle Cell Association of Texas to learn more about our work and how you can get involved.

PO Box 112057  Houston, Texas 77293

832-970-0071

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